YouTube’s Discriminatory New Policies are Destroying What is Shane's life expectancy? 2 days ago   10:17

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What is Shane's life expectancy? YouTube’s Discriminatory New Policies are Destroying 2 days ago   06:48

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Shane was born with Spinal Muscular Atrophy Type 2, a progressive disease that causes muscle deterioration and weakness. Today, we discuss his life expectancy and how a breakthrough treatment, Spinraza, has greatly changed his future.

MORE INFO ABOUT US AND OUR CHANNEL:

You can follow us on Instagram at:
Shane: https://www.instagram.com/shaneburcaw
Hannah: https://www.instagram.com/hannahayl

Our address:
Squirmy and Grubs
PO Box 16411
Minneapolis, MN 55416

You can PREORDER Shane’s upcoming memoir, STRANGERS ASSUME MY GIRLFRIEND IS MY NURSE, featuring many never-before-told stories about Shane and Hannah’s relationship, right here: https://www.amazon.com/Strangers-Assume-My-Girlfriend-Nurse/dp/1626727708

SUBSCRIBE for more! 👉 https://www.youtube.com/c/squirmyandgrubs

Intro animation made by Pinkietoons! Check out her Instagram page to see more of her awesome work: https://www.instagram.com/pinkietoons

Shane was born with a neuromuscular disease called Spinal Muscular Atrophy that requires him to use an electric wheelchair. He is the author of several award-winning books, the President of a nonprofit organization called Laughing At My Nightmare, and a renowned public speaker who has performed across the country at places such as Harvard University, The University of Florida, The University of Connecticut, Princeton University, and many more.

Hannah is a senior at Carleton College, studying sociology and anthropology. She works as a researcher for an educational consulting firm. Her future aspirations include attending law school and owning a goat sanctuary. She films and edits the “Squirmy and Grubs” vlog.

Shane and Hannah have been dating for over 2.5 years and living together in Minneapolis in recent months. Their interabled relationship often confuses people, because much of society still cannot fathom people with disabilities being involved in loving, intimate relationships. Anyone who watches these episodes will quickly see their relationship is just as “normal” as any other. Sure, Hannah helps Shane use the bathroom and brush his teeth, but those activities do not detract from the emotional, intellectual, and physical connection they experience together.

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